One of the biggest lessons we have learned is that each of us have different things we are dealing with and different areas we need support in. But the overwhelming response was that we all NEED support and we NEED each other! We need ideas for managing pain, treatment options, and most importantly to know that we are not alone in this fight.
Endo is isolating. It can make us feel like no one else knows what we are going through. We have to fight to be heard, fight to make doctors and loved ones understand, fight to do what is best for our body, and fight to stay strong and keep going. Alone it can be exhausting, but slowly endometriosis is becoming visible and we are seeing that we are not alone. We are 175 million world-wide strong. And here in Minnesota, we want to stand together. Together we can answer each other’s questions, support each other during hard times, and feel connected with other warriors. That personal connection can be profoundly healing. My first call with another endo warrior left in me tears; not due to sadness, but due to an overwhelming sense of relief and joy that there was someone else I had personally talked to who was on a similar journey.